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Group discourages far-reaching patient data use consents

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While it may make health organizations feel better, it's not a good idea to ask patients to offer blanket consents for many levels of health data disclosure according to a new report by the Health Privacy Project of the Center for Democracy and Technology. Instead of building a health data sharing infrastructure by asking patients to give permission for all data uses, the group says, consumers are better served by a more tightly-controlled system. Health data sharing infrastructures should include audit trails, technical safeguards and systematic enforcement in addition to getting consent for data sharing and giving notice of where the data will go. To date, they warn, much of the discussion around sharing patient data has positioned privacy as an 'obstacle,' "but it's clear the opposite is true," says Deven McGraw of the CDT's Health Privacy Project. "Enhanced privacy and security...will bolster consumer trust and confidence and spur a more rapid adoption of health IT."

To learn more about the report:
- read this Healthcare IT News article

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Comments

i do not have any understanding of all the new laws to include computors linked with drs.,pharmacies ect..but i and an xtreme amount of people are very offended,scared,confused ,and it must benefit those w,money,where is the privacy going to?now as i have found ,regardless of the privacy forms i filled out w/the drs.off.,pharmacy offices,all it takes now a dr pulls your name w,out asking tells you where youve been what you taken when you took it ect... what nobody takes in consideration is to ask why they have?over the past 3 years i have been fracturing some bones,staying in pain daily ,chronic w/no way to pay.im now on medicaid. i would see a dr. when i could to help w/pain but you have to go elsewhere when the bill gets too high.so afterthe dr. tells you to find another dr to help he walks in and saysi see you have seen2 other drs this yr. for same reason so i cant help you it would look like im helping a drug addict.,i mean with every test,exam,everything possible,its osteoperosis,i cant even find a pain specialist im not very good talking to drs. and worse at explaining my pain without this guilt complex they have now imposed.i want my rights back to privacy if that is still possible in the u.s.,i know they have a hard time w/fraud.but test prove all that any body can get your med.info w/this new program. plese help !!coastal area s.c.

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